Our summer started off with a travel itinerary that landed us in quite a few hotels. The THT partnered with the Sickle Cell Disease Foundation, California to bring a voice to the Foundation for Sickle Cell Research Conference held in Washington, DC, advocate for better care in the with with the PSCRC and support our community by attending the annual Camp Crescent Moon where kids living with sickle cell disease, get to be kids.
Statewide Action: Sharing Knowledge, Locally, Regionally, Nationally....
On June 20, 2018, our team from the west, the PSCRC, partnered with Banner University Medical Center to host a series of educational talks on Sickle Cell Disease Management. Speakers included: Dr. Lawrence Long, UCSF Benioff Children’s Hospital, Oakland; Dr. Kathryn Hassell, University of Colorado, Colorado Sickle Cell Treatment and Research Center; Dr. Susan Claster, Martin Luther King Jr. Outpatient Medical Center; Dr. Marsha Treadwell, UCSF Benioff Children’s Hospital, Oakland; Margaret Berg, MSN, RN, FNP-C, Banner University Medical Center; and Dr. Anne Marsh, UCSF Benioff Children’s Hospital, Oakland. We had nearly 50 individuals attend.
Presentations were held on the following topics:
Pain Management in sickle cell disease
Overview of complexities of sickle cell disease care in adults
Avoiding Unnecessary Transfusions in sickle cell disease
Culture and Context: Impact on sickle cell disease care
Use of Trans-Cranial Doppler’s in the management of sickle cell disease
Courtesy of Shalini Vora
Summer Fun in Pacific Palisades, California: Camp Crescent Moon Kids
Camp Crescent Moon was all sunshine and smiles as we celebrated youth living with sickle cell disease. SCDF’s Board of Directors, along with the SCDF team and community supporters all rallied together to raise approximately $150,000 for the camp’s operations. SCDF was able to reach 100% of their financial goal to cover the cost of camp for over 90 campers, 60 support staff and volunteers, and 15 clinicians. All hands were on deck as the foundation engaged volunteers from as near as Los Angeles, CA and as far as Raleigh, NC!
Each year, steady and tedious work to improve the overall health of the individuals SCDF serves, is reinvigorated as the Foundation renews their commitment to serving those living with sickle cell disease. Staunch supporters of the Sickle Cell Disease Foundation were able to see their dollars and time commitments in action as they toured the Temescal Canyon Gateway Park in Pacific Palisades, CA. As an additional highlight, Camp Crescent Moon was visited by Senator Henry Stern of the 27th District of the State of California where he was able to attest to how beautifully the park has come to life.
SCDF thanks all of supporters who showed up to fortify their commitment to the SCDF Cause, including but not limited to, the Center for Inherited Blood Disorders, Pfizer Pharmaceuticals, Tony Gonzalez, Herzog Corporation, and the Alpha Phi Alpha Fraternity.
See the campers live and in action....
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